A Young Wife’s Tale

Some of the simplest remedies that help him are things like over the counter heat patches, heating pads, and hot baths with epsom salts. Another thing that has helped David is chiropractic care.

I’ve blogged before about the Back 2 Life Machine. It was very helpful when he was flaring so badly the muscles in his back would spasm. You could actually see the muscles in his lower back twitching. The Back 2 Life Machine helped stretch David’s lower back very gently.

At different times David’s rheumatologists have given him injections in his back of things like methotrexate and cortisone. They typically only offered mild relief.
Doctors have prescribed many different medications to help David with his pain. Some of the medications that have given David significant relief are hydrocodone, Lyrica, Flexeril and Cymbalta. There was only one time when David asked a doctor for pain medication, and the doctor didn’t want to (but he’s the horrible rheumatologist who didn’t think David had Psoriatic Arthritis). I convinced him to give David the medicine, and we found a new rheumy ASAP.

I’m sorry I haven’t been blogging much lately. Things are going really well. And when things are going really well, there isn’t much for me to blog about.

David’s Psoriatic Arthritis is still in remission. He still has pain every day, but he’s able to do quite a bit. For instance, this weekend Bro #3 graduated from high school. We celebrated Friday and Saturday with family and attended the actual graduation ceremony. Sunday morning, David was still able to attend church services!

The day David was diagnosed with Psoriatic Arthritis we learned several things. One, David has psoriasis. He thought he merely had dandruff. Two, he had Psoriatic Arthritis, which we’d never heard of. David and I both felt pretty good when we left the rheumatologist’s office. We had a name for David’s terrible back pain. The doctor was starting him on medication, sending him for x-rays and a bone scan. The rheumatologist said he’d soon be in remission.

We were so naive. The rheumatologist was overly optimistic. (A year later he was fired.) Here’s what I wish I’d known the day my husband was diagnosed with Psoriatic Arthritis.

1. Remission is not as easy as the doctor makes it sound. David was diagnosed in February 2008. He didn’t go into remission until December 2010. He got much, much worse than he was the day he was diagnosed before he got better.

2. Remission does not mean you’ll be doing everything you were doing before the diagnosis. David still has pain every day. He’ll probably never go back to playing softball, racquetball and wakeboarding. We are extremely grateful that he is doing as well as he is. But it’s not like it was before the diagnosis. Remission does not mean cured.

RA Warrior is hosting the Rheum Blog Carnival #3. The official subject is:

Are rheum patients pressured not to take medical treatment? Have you ever read an article that sounds like it discourages medical treatment for rheumatologic conditions? Whether the alternative offered is Eastern medicine, non-prescription medicines, or dietary changes, or spiritual advice, what would you like to say to anyone who would tell patients to forgo medical treatment?

My answer? It’s not just rheumatology patients. David and I have a relative who has been diagnosed with a type of hereditary stage IV cancer. We have prayed for this person and their spouse often over the past year. I’ve been very concerned, of course, but I literally had this thought: Well, at least no one is going to bother them about the medication. No one would tell a cancer patient that organic food or acupuncture will cure them.

I was wrong. They have had people tell them that an all natural approach will cure cancer.

What’s the best thing for David when he flares? David soaks in a hot bath with epsom salts every day. When he flares, he takes additional hot baths. Sometimes he will use a heating pad or Therma Heat patches. Often when he flares the doctor will give him an injection of arthritis medication directly into his back. There’s really not a whole lot we can do except wait it out. David has tried acupuncture, but it is a bit expensive, although it does provide considerable relief.

What helps your jaw when it’s hurting? Rest and relaxation. I try to eat soft foods like mashed potatoes and yogurt when my jaw hurts, so that my jaw can rest. Relaxation through exercise, massage therapy, playing the piano, etc. helps quite a bit. When my jaw pain was very bad a few years ago, I would sometimes drink hot beverages to relax my muscles. I wish you could have seen me with my mouth full of Chai Tea Latte leaning to one side to hold the hot liquid where I wanted it.