Hate/Loathe/Detest
9 Sep
I hate it when people think that suffering in silence is admirable. Seriously? A little old lady with arthritis who never tells her friends, “When we pray, it kills me every time you squeeze my hands,” is not doing anyone any good. Every doctor David sees has told him to acknowledge the pain, to let everyone know what’s going on. Telling people when you are in pain is healthy.
I’m not talking about whining and complaining. For a very convicting post on that, check out Lisa Notes.
I loathe the outrageous cost of Humira and all TNF inhibitors. I detest our health insurance.
At least we have health insurance.
I sound like Pollyanna. I can be glad because, well, at least we haven’t been raped and murdered! I’m watching a lot Law & Order:SVU.
David’s had a severe flare up. I’m really upset with myself because we were arguing last night, we argued a little bit this afternoon, and when he started flaring this evening I wasn’t exactly nice and patient with him. It was more like, “Why don’t you tell me what you want me to do!? Why don’t you ask me to go get your cane?!?
See the bit about hating suffering in silence above.
A Young Wife
Oh, honey. I’m so sorry. Pain stinks. And yes, suffering in silence isn’t brave or courageous. People need to know so they don’t do stupid things. We with illness need to remember that our caregivers are not mindreaders, and while we may feel like we are complaining yet again, caregivers need to know what’s going on.
I’m so with you on the cost of prescription drugs. It’s ridiculous. It simply CANNOT cost that much to make medication. It’s all the stupid advertising. Can you even imagine what a color, two-page spread in a magazine costs? It’s like the patient then tells the doc what they want. PLUS, docs get LOTS of incentives for prescribing certain meds, so you KNOW who is paying for that.
You guys are in my prayers….love you.
Kerri
Don’t be hard on yourself. My husband and I have our ‘cranky days’. I tell him as long as we’re not too cranky on the same day we’ll be okay! It’s a tough situation. I say “Amen” to all your frustrations. I hate seeing doctors, even the nice ones. I hate taking meds and I hate the way the pharmacy tech looks at me when she tells me the cost of the med! I hate when people say ‘there must be something God wants you to learn through this’ like I’ve failed some divine pop quiz and my illness is the result. My husband just rolls his eyes and says you just gotta laugh at some of them. I don’t understand why any of these things happen but I do know God does walk through them with us. You look like an adorable, young couple and I pray David gets the Humira soon and is much, much better. I also pray for you because I know it is hard to walk this road and you can get so tired. Absolutely do not suffer in silence. Even though we’ve never met I pray for you both, I know God knows exactly who you are! Reading your experiences has been helpful to me because no matter how ‘down’ you seem there is that underlying optimism that we all have to have to make it through. Take care and God Bless you – today!
Thank you all so much for your prayers. We really need them. And Karen, I really appreciate your comments. They really encouraged me.