Cheating
4 Aug
I feel like I’m cheating on my blog. I haven’t really been writing. I’ve just been making lists.
I hope no one is offended or disappointed. Right now I just have no desire to write about David’s arthritis. It’s so awful. Things are really hard. We were expecting David to feel great this summer. He’s felt better, but definitely not great.
Anyway, if I write about it, it will just sound like whining. Everyone would try to tell me how it’s going to be fine, blah, blah, blah…But you know what? It might not be fine. David may never go into remission.
I’d better stop myself before I start writing about this. Because this past week I haven’t even wanted to think about arthritis.
I’m stopping now. No more arthritis.
Have I told you, dear reader, about the hand soap I like for the kitchen? Bodycology’s lemon scented hand soap. It smells like real lemons! You can get it at Wal-Mart.
A Young Wife
You know, lists are not a bad thing. You write really good articles, but don’t neglect the power of lists. People like me have a hard time reading a blog articles entirely but when there is a 1. 2. 3… 10. next to a bold heading… I can’t resist.
Cheat away! It is hard to keep a positive outlook when things don’t look so great. It’s also hard to sit through people’s well wishes when they haven’t gone through an ounce of it either.
My blog is venting/therapy/brain dump.
Honey, you wouldn’t be whining. There are many people out here with struggles, and blogging is wonderful therapy! Besides, you can get encouragement! Yes, some people who have never known illness may give you the platitudes, but there are many more who will support you and pray for you and David.
Being a care-taker of a chronically ill loved one has to be one of the hardest jobs in the world. I am actually thankful I am the sick one, because my husband handles the stress of care-giving much better than I would! And it’s so difficult to see those we love suffer.
You write about whatever you want to write about, and know that there are folks out here who love you and want to support you in tough times. Hoping and praying David has a good day today…
Kerri
Jftheophilus, thank you! I love lists. Shopping lists, to-do lists, packing lists…They give me a sense of order and calm. Maybe that’s just the OCD talking.
Thank you so much Joanna and Kerri. I really appreciate you kind words.
Woe is you. I would love to hear about a young wife encouraging and serving her husband, but instead all you write about is how hard your life is and how nothing ever goes right. I’d love to see a Christian outlook on things and praise for the wonderful things God HAS blessed you with rather than constant complaining about how things are not how you wish them to be. It can’t make David feel good to hear you talk about his not meeting needs or wants in this public forum all the time. Do you love your husband? Serve him and express that rather than crying to the world all the time with woe is me nonsense.
Wow Basil how Christian and kind hearted to anonymously bash someone. You need to look at yourself a lot more before you start criticizing other people.
hey i have the same arthritis and i work on cars for a living, best thing out there is enbrel, try and see if it works, im only 26 and have had this for 5 yrs now. I do not sugest methrotrexate cause that made me feel worse than the arthritis. i know the insecurity with the pain as well, god bless and good luck.
Thanks, Nick. Unfortunately, our health insurance does not cover any of the TNF inhibitors such as Enbrel or Humira. He’s got a script for Humira sitting at the pharmacy, but we don’t have the $1,500 a month to fill it. I am so glad to hear that Enbrel works for you, though. Someday, our health insurance will cover it, and we’re encouraged knowing it works for so many people.
Hey Ashley,
Have you checked out PPARX? I’m not sure what the website is, I’m sure you can google it. They help people pay for prescriptions sometimes…depends on income level and stuff like that, I think. My mom and dad are on Medicare now, and my mom has a prescription that is $4000.00 a month. I KNOW! She has acromegaly, a very, very rare genetic disease. THere is a tumor on her pituitary gland that makes too much growth hormone, and her hands, feet, nose, face, both jawbones and heart keep growing if she doesn’t take this medication. She was working on getting funding, but the acromegaly fund “ran out.” WHATever. It’s alot of paperwork, but it’s worth a try.
I do attend a arthritis clinic. When i first was diagnosed with psoriatic arthritis i was serving tables at tgi firdays.My doctor did not tell me my other options after enbrel flat denied my insurance, and enbrel did not tell me either, buttt you can get assistance, its out there trust me. There was this pre authorized insurance coverage lady at the clinic who told me that if my insurance didnt cover it, then i need to come in and fill out more paper work to seek coverage. I beleive the state takes over, im not sure though and i cant see how income matters, that stuffs 1200 a month, and unless your filthy rich who can pay for it. Luckily my next job covered it completely so i did not have to look into it any further. but trust me, its out there. these companys are making it expensive cause they can. It shouldnt be allowed in my opionon.
Hey, Nick. That’s great that you got assistance. Unfortunately, income does matter, and we make too much money for assistance through all the programs we’ve researched. We do check with every program that everyone mentions, like we’ll check on PPARX that Kerri mentioned.
I’m with you, though. Humira is $2200 a month with no insurance, $1500 a month with our insurance. You’d have to be making a lot more money than we are in order to say, “Oh, gee $1500 for a prescription. Okay, fine,” like we’d say about a $15 prescription.
tgi fridays didnt cover it at all, so i had got another job, the next job only paid 24,000 a year, and there insurance company covered it all the way.Then i was laid off. now im at a shop making less then that, and there insurance company covers it all the way too. I would change insurance coverage.
i had never got assistance for it, but i know people who had, and they made better money then i did, and they were covered all the way, trust me.
Yeah, Nick, I really wish we could change insurance companies.