A Young Wife’s Tale

Yesterday, I blogged about David’s appointment with his new rheumatologist. As the nurse was asking David what medications he was taking, David mentioned that he has been taking less than one pain pill a week. I knew he was taking less, but I didn’t realize how much less. The only other medication he’s been taking is Humira.

Since December, David has been off of most of his medication. He has been in better moods, he has only flared when he’s done too much, and even then, they were mild flares.

Throughout his appointment, David talked. He answered ninety percent of the questions asked. At past appointments, I’ve done at least fifty percent of the talking. He volunteered information he thought the doctor might like to know. It was pretty amazing

This rheumatologist did not talk over him. She asked many questions regarding David’s psoriasis, which was nice, since most rheumatologists focus on the arthritis part of psoriatic arthritis, especially since David never complains about his psoriasis. She listened to our answers and repeated back to us what she was hearing. At one point, during family medical history, she asked us to clarify if a relative had irritable or inflammatory bowel syndrome. She didn’t freak out the way other rheumatologists have when he mentioned having taken medications such as Wellbutrin and Celexa.

Towards the end of the appointment, she told David she wants him to get back to exercising. She emphasized that David do an exercise he enjoys. If you enjoy your exercise routine, you’re much more likely to stick with it. She seemed full of common sense.

RA Warrior is hosting the Rheum Blog Carnival #3. The official subject is:

Are rheum patients pressured not to take medical treatment? Have you ever read an article that sounds like it discourages medical treatment for rheumatologic conditions? Whether the alternative offered is Eastern medicine, non-prescription medicines, or dietary changes, or spiritual advice, what would you like to say to anyone who would tell patients to forgo medical treatment?

My answer? It’s not just rheumatology patients. David and I have a relative who has been diagnosed with a type of hereditary stage IV cancer. We have prayed for this person and their spouse often over the past year. I’ve been very concerned, of course, but I literally had this thought: Well, at least no one is going to bother them about the medication. No one would tell a cancer patient that organic food or acupuncture will cure them.

I was wrong. They have had people tell them that an all natural approach will cure cancer.

We became active on our new health insurance December 4, but didn’t receive our cards until the middle of January. David ran out of all his medicine, except his Humira, because it’s provided by Humira Patient Financial Assistance. HR wouldn’t help him get a temporary card. They kept saying he could pay for everything out of pocket and then submit the receipts for reimbursement. I don’t know about you, but we don’t feel like putting thousands of dollars of charges on our credit card and waiting months for the insurance company to reimburse us.

Here’s the thing: David has been fine without his meds. In fact, he’s been active. In Dallas he played Kinect and wrestled with his nephews. Since we’ve been back, we’ve gone out with friends a few times, played Kinect a bit, walked Henry to the mailbox a couple of times…David hasn’t noticed much of a difference without his anti-inflammatory drugs, Lyrica, etc.

*Did you know David doesn’t wear a wedding ring? I bought him a white gold band when we got married. He lost it within a few months. We bought a cheap replacement band made of tungsten, but he never wears it. He says it bothers his hands. It’s strange to me because he never mentions his hands hurting. The joints that bother him the most are his vertebra, hips, knees and wrists. He does have psoriatic arthritis in every joint in his body, except his shoulders, but his hands are still stronger than mine. He opens jars for me all the time.